Liam’s Room palliative care professionals say:
Palliative care greatly facilitates and enhances communication, which is often the pitfall of any ‘bad’ patient experience.
Families that have been consulted by our service certainly notice an improvement in care - improved coordination, improved communication, etc.
The new education by the palliative doctors, the palliative care conference back in December and the use of Liam’s Room have helped staff understand palliative care as an ongoing process that should be started at the time of diagnosis.
Research has shown that pediatric palliative care services may increase overall satisfaction with care for patients and their families. Yet, many pediatric health care providers hesitate to recommend palliative care for their patients, and parents and caregivers are often unaware of its benefits.
The National Institute of Nursing Research has a created the Palliative Care: Conversations MatterTM Campaign to help health care providers become more comfortable with discussing palliative care with their patients. To learn more or to download or order campaign materials, visit www.ninr.nih.gov/conversationsmatter or call 301-496-0207.
In addition, the following organizations offer information and resources for health care professionals.
Center to Advance Palliative Care -
Children's Hospice and Palliative Care Organization -
Initiative for Pediatric Palliative Care -
American Academy of Pediatrics -
National Hospice and Palliative Care Organization -